Trying to get through life as a medical parent as well as being a caregiver for my Mom. Updates on my son with NASH and CRPS. Let's get through this together.
I tend to focus more on Jamey's pain than on liver disease. Jamey has CRPS, internally, believed to be in his liver and bile ducts. While liver disease can kill him, the pain is a huge contributing factor to not only the liver disease, but to the drastic changes our lives have taken in the past 4 years.
CRPS can cause swelling and tissue changes in the affected area. One could only imagine the amount of damage it has done over time to his liver. His case is extremely complex and very rare. That's not in a good way. And like Liver Disease (NASH specifically) There is not enough research done with CRPS. There needs to be much much more.