Oh it's one of those days

I've been on the go since 7 am. I could really complain, but there really is no use. Some good things have happened today. Jamey's new glasses are in and he has them. He was surprised on how much better he can see. Sadly, that's a testament to how much damage the pseudotumor cerebri caused.

I was wrong about Ed's appointment, it wasn't tonight it's actually Wednesday. It's not the first time I got it wrong. I am really glad they called today to confirm. Tomorrow is one of Jamey's and Mom's intake appointment at LIFE. She got some news about ti today that didn't necessarily make her happy, but truth be told, I expected it. It will end up being ok.

I had so much to say earlier and now I just want to go to bed. It's how it usually goes though. I need to give Jamey his last dose of medicine first though and get more from our hiding spot.

This really fits for today :) How was your Monday? 



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I guess I'm actually supposed to fill this out. I'm a passionate medical mom of a 19 year old liver/CRPS patient. My goal with my blog is to raise awareness for his conditions. And to hash out my feelings about it. There are a lot of raw emotions when your life is suddenly stalled by any illness, let alone your child's illness. 

I'm also attempting to either "find myself" or "remake myself". So much of my time and energy goes into caring for both my mother (end stage COPD) and son, along with trying to be Mom to my younger son and a wife, that most of the time I feel lost. I tend to put myself on a back burner and right now I'm burning out. 

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